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These studies suggest that diabetes websites and online communities can improve clinical outcomes, provide valuable resources and support, but often lack in credibility, accessibility, and sustained engagement.
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Diabetes websites are a crucial resource for the over 1.5 million Americans diagnosed with diabetes each year. However, the quality of these websites varies significantly. A comprehensive content analysis of nine top diabetes websites in the USA revealed that while most sites had good design features, they often lacked credibility, with few noting an author, editor, or reviewer. Accessibility was another area of concern, with less than half of the assessed items being met. The average readability grade level was 8.8, indicating that the content might not be easily understandable for all users. Despite these issues, the websites generally provided basic diabetes information, though many lacked details for caregivers, providers, or insurance information.
Diabetes online communities (DOCs) offer significant potential for improving clinical, behavioral, and psychosocial outcomes. A review of DOCs highlighted their diverse platforms and target populations, showing that engagement in these communities can lead to improved self-efficacy, higher self-care levels, and better quality of life scores. Studies have shown that DOC use is associated with lower A1C levels and improved glucometrics, particularly in DIY non-commercial, open-source hybrid closed-loop systems communities. These findings suggest that DOCs can be a valuable tool for patients and healthcare providers, although more randomized control trials are needed to further validate these benefits.
Engagement is a critical factor in the success of diabetes self-management websites. A study on an Internet-based diabetes self-management intervention found that participants visited the website frequently, with an average of 28 visits over four months. Features such as goal setting, action planning, and self-monitoring were integral to the website's design. The study found that engagement, particularly in self-monitoring, was consistently related to improvements in healthy eating and exercise. However, engagement decreased over time, highlighting the need for strategies to maintain user interest and participation.
A systematic critique of diabetes websites identified usability, content, and reliability as key factors for excellence. The study found that while content was generally excellent, many sites lacked specific advice on controlling cardiovascular disease risk factors. Only 17% of the sites met all criteria for reliability, with the American Diabetes Association and Joslin Diabetes Center websites being notable exceptions. This underscores the importance of ongoing evaluation and physician input to ensure patients receive meaningful and relevant information.
Web-based care management can significantly improve glucose and blood pressure control in patients with poorly controlled diabetes. A study involving 104 patients found that those receiving web-based care management had lower A1C levels and better blood pressure control over 12 months compared to those receiving usual care. Persistent website users showed greater improvements, indicating that consistent engagement with web-based tools can lead to better health outcomes.
The landscape of diabetes websites and online communities is diverse and offers significant potential for improving patient outcomes. However, issues related to credibility, accessibility, and sustained engagement need to be addressed. Healthcare providers can play a crucial role in guiding patients to high-quality resources and encouraging consistent use of these tools to manage diabetes effectively.
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