What are the ethical considerations in the use of digital surveillance technologies in public health and safety?
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Ethical Considerations in the Use of Digital Surveillance Technologies in Public Health and Safety
Introduction to Digital Surveillance in Public Health
The COVID-19 pandemic has accelerated the deployment of digital surveillance technologies to monitor and control infectious diseases. These technologies, while offering significant benefits in terms of early detection and response, also raise numerous ethical concerns that need to be addressed to ensure their responsible use1 2.
Privacy and Confidentiality Concerns
One of the primary ethical issues associated with digital surveillance technologies is the potential infringement on privacy and confidentiality. The collection of sensitive data, such as individuals' movements and contacts, can lead to significant privacy violations if not properly managed. Public concerns often revolve around inadequate information, unclear governance frameworks, and insufficient privacy protections1 8. Additionally, the use of passive data from mobile phones and other devices without active user participation further complicates the issue of informed consent and privacy7.
Trust and Public Engagement
Trust is a critical factor in the successful implementation of digital surveillance systems. The public's willingness to participate in such systems is often influenced by their trust in the entities managing the data and the perceived integrity of the surveillance processes. Ethical governance frameworks are essential to build and maintain this trust, ensuring that data is used responsibly and transparently1 4. The lack of trust and engagement can exacerbate existing healthcare disparities and digital divides, particularly among vulnerable and at-risk populations1.
Civil Rights and Autonomy
The deployment of digital surveillance technologies can impinge on basic human and civil rights, including the right to autonomy. The use of these technologies must be balanced with the need to protect individual freedoms and prevent potential abuses. Ethical considerations must include the protection of civil rights and the establishment of clear guidelines to prevent the misuse of surveillance data1 8.
Equity and Inclusion
Digital surveillance systems must be designed to be inclusive and equitable, ensuring that all segments of the population are represented. The underrepresentation of certain groups can lead to biased data and ineffective public health responses. Efforts must be made to reduce biases related to digital data and to ensure that surveillance systems are accessible to all, regardless of socioeconomic status or technological proficiency3 5.
Governance and Ethical Frameworks
The establishment of robust governance and ethical frameworks is crucial for the responsible use of digital surveillance technologies. These frameworks should address issues such as data integrity, privacy protection, and the ethical use of artificial intelligence and big data analytics. Policymakers and public health officials must work together to develop global governance structures that ensure the ethical deployment of these technologies1 6 9.
Conclusion
The use of digital surveillance technologies in public health offers significant opportunities for disease prevention and control. However, these benefits must be weighed against the ethical challenges they present. Addressing privacy, trust, civil rights, equity, and governance issues is essential to ensure that these technologies are used responsibly and effectively. By developing comprehensive ethical frameworks and engaging in transparent public discussions, we can harness the potential of digital surveillance while safeguarding individual rights and public trust.
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Most relevant research papers on this topic
Ethics, Integrity, and Retributions of Digital Detection Surveillance Systems for Infectious Diseases: Systematic Literature Review
Digital surveillance for infectious diseases faces ethical concerns, including inadequate information, unclear governance, and potential privacy issues.
Digital technology and disease surveillance in the COVID-19 pandemic: a scoping review protocol
Digital surveillance technologies can enhance disease prevention, detection, tracking, reporting, and analysis during the COVID-19 pandemic, but ethical, legal, safety, and sustainability concerns must be addressed.
Social Media- and Internet-Based Disease Surveillance for Public Health.
Social media and internet-based data collection offers untapped opportunities for public health surveillance, but requires improved integration, validation, and ethical considerations for optimal results.
Ethics and governance for digital disease surveillance
Digital epidemiology in public health surveillance during epidemics raises ethical concerns, but using new data sources like cellphones, wearables, and social media can be ethically justifiable and obligatory.
Participatory Disease Surveillance Systems: Ethical Framework
Participatory surveillance systems using digital platforms and mobile apps face ethical challenges, including electronic consent, privacy protection, justice promotion, and interdisciplinary capacity building.
Digital tools against COVID-19: taxonomy, ethical challenges, and navigation aid
Digital public health tools can help combat COVID-19, but ethical boundaries and practical guidance are needed for effective implementation and decision-making.
Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World
Passive data use for digital public health surveillance in the postpandemic era presents ethical challenges in informed consent, privacy, equity, and ownership.
Ethics, Integrity, and Retributions of Digital Detection Surveillance Systems for Infectious Diseases: Systematic Literature Review (Preprint)
Digital surveillance systems for infectious diseases may have ethical concerns, such as inadequate information, unclear governance, and potential privacy issues.
Communicable Disease Surveillance Ethics in the Age of Big Data and New Technology
Big data and new technology can improve communicable disease surveillance, but public trust in its use requires informed discussion, transparency, and ethical frameworks.
Digital tools against COVID-19: Framing the ethical challenges and how to address them
Digital public health tools can help combat COVID-19, but ethical boundaries and legal risks remain unclear, and a ten-step guide for policymakers can help navigate these uncertainties.
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